News Archive

April Recipe of the Month Try a bowl of Thai Noodles! 
 
May Recipe of the Month Try a delicious bowl of corn, tomato, and avocado salad! 
 
April Recipe of the Month Try a bowl of Thai Noodles! 
 
March Recipe of the Month Make homemade pesto using this recipe!!! 
 
January Recipe of the Month Happy New Year! Enjoy the New Year by trying these Roasted Red Peppers!  
 
October 2016 Recipe of the Month Warm-up in the fall with a Potato Casserole! 
 
February Recipe of the Month Try these delicious heart-shaped chocolate cake! 
 
November 2016 Recipe of the Month Enjoy this side dish of stir-fried rice! 
 
December 2016 Recipe of the Month Enjoy these homemade Cheetos!! 
 
September 2016 Recipe of the Month It's dessert time!! Try this low-protein birthday cake. 
 
July 2016 Recipe of the Month Cool off with a cool whip cone! 
 
May 2016 Recipe of the Month Try this delicious recipe!
 
Join the discussions! Start a topic of interest or join the discussions already in progress. The discussion forum is a great way to connect with other registered participants.
 
March 2016 Recipe of the Month Try this delicious recipe!
 
April 2016 Recipe of the Month April showers call for hearty salads!
 
February 2016 Recipe of the Month Care for your heart with this tomato rich recipe!
 
January 2016 Recipe of the Month Try January's Hush Puppies!
 
Paid Research Opportunity for Adults with PKU! Learn about this amazing opportunity for Adults with PKU and their families to earn $600! Read more about this study.
 
Emory Metabolic Camp 2015 Watch this video to learn more about the Emory Metabolic Camp. ...
 
December 2015 Recipe of the Month Stay warm with this delicious recipe! Happy New Year!
 
November 2015 Recipe of the Month Keep warm with this delicious recipe!
 
The Professional Portal is Here! The patient registry is now available to qualified researchers and clinicians.
 
October 2015 Recipe of the Month Try this delicious recipe for fall!
 
September 2015 Recipe of the Month Try this delicious recipe for fall!
 
August 2015 Recipe of the Month Try this delicious Spinach salad!
 
July 2015 Recipe of the Month Try this delicious tart recipe!
 
Help us learn more: Tyrosinemia Quality of Life Survey This survey is designed to look at the effects of Tyrosinemia on the quality of life of people who have it (and on the parents of people who have it). 
 
June 2015 Recipe of the Month Try this new spin on the traditional taco!
 
Emory and NPKUA Phe Monitor Study Emory University’s Department of Human Genetics is collaborating with the National PKU Alliance to test home monitoring devices for phenylketonuria (PKU) patients.
 
Guthrie-Koch PKU Scholarship The Guthrie-Koch Scholarship and Merit Awards is now accepting applications for this year. Deadline: October 15, 2015.
 
Coverage Assistance for Medical Foods Compassion Works Medical assists with medical foods insurance coverage issues.
 
Save the Date 6.18.2014 - Spirit Night Fundraiser for Metabolic Camp Uncle Maddio's is hosting a spirit night on June 18th 5-8pm to benefit the Metabolic Nutrition Program at Emory University.
 
May 2015 Recipe of the Month We welcome summer with this delicious potato salad recipe!
 
April 2015 Recipe of the Month We welcome spring with this refreshing and declicious fruit salad!
 
March 2015 Recipe of the Month March is here and we are highlighting the delcious broccoli and carrots recipe!
 
Get Involved: PEG PAL Study You may have already heard of an experimental medication referred to as PEG PAL. A new clinical study of PEG PAL is starting.
   
NEW Research Opportunities We are pleased to share with you a few research studies now recruiting participants.
 
PKU Aquarium Event Join us at the Georgia aquarium on Saturday September 13th at 10AM.
 
November 2014 Recipe of the Month For Thanksgiving month, we bring you maple roasted squash!
 
January 2015 Recipe of the Month Happy New Year! We thank you all for being a part of the NBS Connect registry in 2014.
 
National PKU Awareness Day, December 3rd, 2014 Celebrate with Emory Department of Human Genetics!
 
December 2014 Recipe of the Month It's beginning to look (and feel) a lot like Christmas! We're sharing the taste of the season with our low protein Holiday Cookie!
 
October 2014 Recipe of the Month Welcome to the Fall months!
 
19th Annual Metabolic Camp at Emory University (Atlanta, GA) Join us June 24-29, 2013 for the 19th Annual Metabolic Camp at Emory University in Atlanta, GA!
 
September 2014 Recipe of the Month We hope you all had a safe and wonderful labor day weekend!
 
NBS Connect is now on Twitter and Facebook! We’re excited to introduce the NBS Connect Patient Registry social media pages!
 
Announcement from Cambrooke Therapeutics Cambrooke Therapeutics announced on 12/4/13 that the company has formally changed its name to reflect its broader focus on developing and offering therapeutic nutrition products for peo...
 
Screening Through the Life Course Campaign on GenesinLife.org Through the end of March 2014, Genes in Life will be putting the spotlight on Screening through the Life Course, covering the importance of genetic and other types of screening from birth to adulthood...
 
20th Annual Metabolic Camp at Emory University in Atlanta, GA! Join us from June 23-28, 2014 for the 20th Annual Metabolic Camp at Emory University in Atlanta, GA!
 
Holiday Cookie Recipe! Happy Holidays! The NBS Connect team heartily thanks our first 100 registerd participants for your participation and contribution to the NBS Connect registry. We wish you all a wonderful holiday seaso...
 
Now registering MSUD patients! We are pleased to announce that the Maple Syrup Urine Disease (MSUD) detailed questionnaire has been developed
   
Emory response to Cambrooke article Cambrooke Foods recently posted a blog regarding the impact of amino acid formula on the kidneys of adolescents and adults with PKU. 
 
Advocacy Update! Medical foods legislation has been re-introduced in the U.S. Senate and House of Representatives!  
 
National PKU Awareness Day is December 3rd, 2012! On September 19th, the U.S. Senate unanimously passed a resolution designating December 3rd, 2012 as National PKU Awareness Day!
 
Emergency Preparedness for Hurricane Sandy As those of you on the east coast prepare for Hurricane Sandy, we wanted to pass on to you the link to our emergency preparedness tips that are part of My PKU Binder.  Much of this section was wr...
 
PKU Research Advances! Dr. Thomas Franklin, Chair of The National PKU Alliance (NPKUA) Scientific Advisory Board, details the latest PKU research underway designed to improve treatment and potentially find a cure. He shares...
 
Coming soon MSUD and Fatty Acid Oxidation Disorders will be developed soon.
 
NBS Connect Launch! We are pleased to announce the Launch of NBS Connect patient registry. Extensive development of the registry will occur via a phased in approach using Phenylketonuria (PKU) as the model disorder. Deta...